It dawned on me today, I haven't post anything in awhile. If you have read earlier post you know that we chose to educate our kids at home, with the help of the ALE programs. I made a change this year from CVA to Three Rivers Homelink.
I felt like some people were pressuring me into putting Melodie in to traditional public school. So to compromise I chose Homelink, it offers her 6 onsite workshops. Socialization.
SOCIALIZATION as defined in the dictionary:
This is starting to sound like a rant. I apologize. It just hits a nerve.
The point being, there is a lot required for starting the school year, the program is only in it's 5th year of existence with about 400 K-12 students. Due to lack of funding, and space they share a building with a local church, as the district doesn't have enough room to house the program.
So in the last week we have had group consultant meeting, orientation, open house, school pictures, wrote her WSLP as required by the state, and started at home class.
I also babysit three days a week and we have therapy once a week. My plate has been a little full.
I'm still waiting on her Science, Language Arts and Math curriculum. Part of that was my fault, but thanks to my mom things should arrive shortly. So far this year we have spent $715 out of the $800 we get for the year. I hope to be able to save the rest for a field trip or two.
Melodie's compression suit arrived, I think the pants are too big. we are going to send them back for a smaller size. She loves her compression suit, and I think it is going to be a HUGE help for he onsite classes.
She has been able to stop taking the Clonidine at night. She takes a 5 mg time release melotonin.
She isn't taking Focalin every afternoon, but most. Still every morning. I can say that I never expected to be off or reducing ANY meds yet, this is amazing.
As me make leaps we begin to change the norm again. Again we enter a state of transition. With the help of my support system, and Katie our SID OT, we shall survive.
"Well why was your fork IN your EYE!"
Where the Sidewalk Opens
This is a story of two children who fall, not in the middle, but not far enough into the lower end of societies "normal" spectrum to really qualify for being noticed. This is a story of two kids who would have "fallen through the cracks" of society and brick and mortar schools. This is where the sidewalk opens and we bring our kids out. Where we pull them from the cracks and help them show the world just how wonderful they really are.
Friday, August 31, 2012
Friday, August 10, 2012
Little Boy Lost
It's been a while and so much has happened in that time!
We have been doing our OT and I am happy to report that Kaiden is completely off daytime meds. No more Focalin!!
We do still have some problems with sleep, not nearly as much as we were. A Benadryl and a Melatonin solve that issue. But they are not needed every night!
A little that has happened this month. We missed our therapy appointments twice, once for out of town and once for illness. Man, as skeptical as I was of therapy, I can definitely tell a difference when we don't go.
Kaiden is almost back to his old tricks if we skip even just one appointment or one day of home therapy.
Needless to say, we are trying our best to avoid those situations again.
Kaiden is starting football! This is his first year and he is very excited to get started.
We have been doing our OT and I am happy to report that Kaiden is completely off daytime meds. No more Focalin!!
We do still have some problems with sleep, not nearly as much as we were. A Benadryl and a Melatonin solve that issue. But they are not needed every night!
A little that has happened this month. We missed our therapy appointments twice, once for out of town and once for illness. Man, as skeptical as I was of therapy, I can definitely tell a difference when we don't go.
Kaiden is almost back to his old tricks if we skip even just one appointment or one day of home therapy.
Needless to say, we are trying our best to avoid those situations again.
Kaiden is starting football! This is his first year and he is very excited to get started.
We have been steadily getting our curriculum for the year, each box that is delivered gets the kids (and us) that much more ready to get started. I am in love with the Language Arts curriculum Kaiden and Sarea are starting this year. It's Michael Clay Thompson and is more of a classical approach than the norm. There is no worksheets, or busy work. The literature is novel based, group reading of Peter Pan, Alice in Wonderland, etc. Then discussions of what we've read. My favorite approach to literature.
Grammar is also story based for Kaiden. It is taught in novel form, a story about a fish named Mud who wants to know how to write a sentence. He learns about structure and parts of speech from other animals.
The vocabulary is Latin based. Teaching them the "stems" of words so that they can decipher any new word they come across.
He is starting Poetry, and the way they introduce it is just fantastic. First, they learn about the sounds and beauty of written and spoken language. The cadence and such. I am such a big believer in the music of spoken and written language.
We also got our Usborne Encyclopedia and Kingfisher book as well. These are the spine to our History and the kids poured over them for quite a while fascinated and getting very excited about History. I am a big lover of History and looking forward to it myself.
All in all, we are almost ready to start our new school year. Minus some curriculum we are still waiting on. Language Arts and Math are ready to go!
We have been enjoying our Summer and I am very much enjoying having my son coming back to me. I am forever thankful for our therapist and the woman who introduced us to the idea of SID.
Hope everyone is having a great Summer and wishing everyone a wonderful school year!
Quote of the day:
I hear running in the hall, Kaid throws open my door :
"Don't be surprised if you hear squealing"
Door slammed, running down the hall, thump, SQUEAL!
Friday, August 3, 2012
5 Cups
I've made the right choice. My family is about to undergo a very big change. Although it's not and easy journey we are about to take it is a necessary one. Nothing worth doing is easy. Although so far, besides some moments alone of very mixed emotions, things have been going well.
I have concerns about Melodie's level of understanding the situation. Although she blows me away sometimes with how well she can understand a very complex situation. And I have amazing friends who are going to help me continue to help Melodie, by allowing us to stay in HomeLink.
I will no longer be a stay at home mom. I will be rejoining the workforce, and I am excited.
When I started this post I didn't really know what I was going to say. This is about the kids right. No this is about LIFE with a SID kid. And this is LIFE happening. So I chose to document it here. With whom ever decides to read it.
I haven't made any decision lightly when it comes to my children. And this one took a lot of soul searching. But the reaction, and level of cooperation have well exceeded my expectation.
I look forward to the wonderful opportunities around me, and I AM moving forward.
I have concerns about Melodie's level of understanding the situation. Although she blows me away sometimes with how well she can understand a very complex situation. And I have amazing friends who are going to help me continue to help Melodie, by allowing us to stay in HomeLink.
I will no longer be a stay at home mom. I will be rejoining the workforce, and I am excited.
When I started this post I didn't really know what I was going to say. This is about the kids right. No this is about LIFE with a SID kid. And this is LIFE happening. So I chose to document it here. With whom ever decides to read it.
I haven't made any decision lightly when it comes to my children. And this one took a lot of soul searching. But the reaction, and level of cooperation have well exceeded my expectation.
I look forward to the wonderful opportunities around me, and I AM moving forward.
Tuesday, July 31, 2012
Why we chose A.L.E.
A.L.E.
When Kaiden was two, I joked about home schooling him. The schools in our area were dreadful. So bad that we received a letter for our oldest telling us that her school had failed its report card, and that we had the choice to transfer her to another school in the district. However, all the other schools had failed theirs as well.
If you've never heard of it, I'm sad to say google will fail you. You'll get results on beer, logistics, Antarctica even. But if you google:
Alternative Learning Experience, then you get a whole host of info.
In this post, I'm going to talk a little about our experience, the who's, where's, why's, and how's.
When Kaiden was two, I joked about home schooling him. The schools in our area were dreadful. So bad that we received a letter for our oldest telling us that her school had failed its report card, and that we had the choice to transfer her to another school in the district. However, all the other schools had failed theirs as well.
We didn't really feel we had a choice, home school it was.
For the first year we went on our own. With a few workbooks from Costco and the internet, we banged together a fourth grade curriculum. We also discovered few issues, her previous school had not taught them the multiplication facts. We knew there had been issues, no spelling tests, no math tests.
So we had a smart, but now lazy, kid on our hands.
I started researching and found out about A.L.E.'s.
Our kids could get a wonderful education, at home, and still be a part of the public school system.
Fantastic.
First we tried WAVA.
Washington Virtual Academy uses K12 curriculum. To be honest, we were a bit overwhelmed at first. When our boxes arrived they weighed in at 180lbs, for only two kids.
We trudged through Kindergarten and Fifth. Not really clicking with the curriculum. I think it's a wonderful set up really, it just wasn't working for us. Kaid was quickly drowning in phonics, but excelling in comprehension, math, science, and history. Sarea was lost when it came to math.
I started to watch a little closer and realized something, Kaiden was dyslexic.
Phonics and dyslexia don't work together so well. We looked into whole language approach. Still nothing, he was a pre reader and wouldn't budge. His doctors claimed it was the school districts responsibility, the district claimed it was his doctors. So I did what any worried mother does when she has access to the internet.
I googled.
During one of my googling sessions, I happened upon a woman who had not only a dyslexic son, but a dyslexic granddaughter. She told me to stop stressing out, to stop frustrating him. Let it go.
She told me that with her son, she just let him be, encouraged him, but didn't push him. At around 7, he started reading. He still had problems, but it was much better.
So as hard as it was, I did. We put phonics on the back burner, we focused on other area's and treaded lightly on reading. When he was seven, we had a breakthrough. His grandmother bought a flashcard set of sight words. We started working on them every night. All of a sudden, he was doing it. Like a light switch had been flipped. He was still at K level, but he was READING.
Now a year and a half later, Kaiden will be starting a gifted reading program. He went from a Kindergarten level to a Fourth grade level in a year and a half.
He is going into third grade, but he is in an accelerated fourth grade math program.
This program has been a godsend for us. Columbia Virtual Academy, the options we have for our kids education is just phenomenal.
So we turned our dining room into a school room and never looked back.
I'm not saying that home schooling four (sometimes six) kids is easy. But it's a decision we didn't make lightly and it's worth it to us. And we have moments like this:
And we get to do fun experiments all the time.
I get to see that "aha" moment when they understand something. I get to learn how their brains work and it is so amazing.
Quote of the day:
"STOP LICKING ME!" Said to the almost 13 yr old...
Now a year and a half later, Kaiden will be starting a gifted reading program. He went from a Kindergarten level to a Fourth grade level in a year and a half.
He is going into third grade, but he is in an accelerated fourth grade math program.
This program has been a godsend for us. Columbia Virtual Academy, the options we have for our kids education is just phenomenal.
So we turned our dining room into a school room and never looked back.
I'm not saying that home schooling four (sometimes six) kids is easy. But it's a decision we didn't make lightly and it's worth it to us. And we have moments like this:
And we get to do fun experiments all the time.
I get to see that "aha" moment when they understand something. I get to learn how their brains work and it is so amazing.
Quote of the day:
"STOP LICKING ME!" Said to the almost 13 yr old...
Labels:
A.L.E.,
ADHD,
Behavioral,
Columbia Virtual Academy,
CVA,
Dyslexia,
Homeschool,
K12,
Parenting,
Sensory Integration Disorder,
Sensory Processing Disorder,
SID,
SPD,
Washington Virtual Academy,
WAVA
Tuesday, July 17, 2012
Two Steps Forward....One Step sideways
Melodie has been responding very well to the SI diet. I have to remember, when her meds don't seem to work, it's a sensory problem not a attention problem. We aren't just teaching the kids, we are teaching ourselves.
We've had chicken pox and survived. Lilly has been down with a nasty UTI and we survived. I won't even begin to pretend like I did it all by myself. My friends and family are an amazing support system. Really I think our story would be much different if it wasn't for them all.
We did have a sleepless night with Melodie a few nights ago. First full sleepless night since the change in medication. I am hoping it was just a fluke. I really wish we could have a sleep study done. But that's a whole different story. Currently Melodie takes 5 mg Time Release Melotonin and .05 mg Clonidine. It really is the best we've found. I could list everything we've tried but that's a long list. You know all those old wives tales and over the counter remedies? We tried them all, no matter how far fetched it sounded. This has been our battle. Our biggest battle. And we are so much closer than we were a year ago.
We are taking our first family vacation this summer. Melodie will get a real break of school work. 4 days of camping at Beverly Beach, then to Portland to the Zoo and OMSI. And if all works out a trip to The Enchanted Forest for Melodie. She absolutely LOVES amusement parks and carnivals.
Monday, July 2, 2012
Stinky Boy Phase
Ok, so at some point in both my boys life, they hit the "Stinky Boy Phase". Any mention of the bathtub was met with a look like I'd kicked their puppy. Shock that I would even suggest it.
It's been two years, two extremely stinky, muddy, wet (from dragging them in and hosing them off) years. We have almost left "Stinky Boy Phase". While Rogue still gives you the are you serious look, he will get in when I point out that yes I am actually serious. Kaiden on the other hand, is a bit more difficult.
We moved and it was a great move. Because of a friend of ours who was willing to take on 7 roommates, we are living in a five bedroom house. Only one problem, our bathroom does not have a tub. Shower stall only. It's big enough to help my five year old with her hair. I actually love it.
When you take a shower, it's not a big deal really. You get your clothes ready, you turn on the water, you get in, get clean, get out. Dry off, get dressed, and move on with your day. Simple. I can get it done in five minutes if needed.
Kaiden takes at least 45 minutes to shower. First, we have to establish that yes he is taking a shower. Then, we move on to, get your clean clothes. This takes about ten minutes of back and forth. His room is on the opposite side of the house.
So, now we are in the bathroom. Then we move into our door routine. Close it this much, well can I possibly open it this much more. The door at it's optimal (too wide for me, too closed for him) width, we then turn on the water. Then we get undressed. Then we get in the shower. Not the water. Just the shower.
It takes a bit to work up to actually getting under the water. We start with hands, then arms, feet, head, torso, and legs. We are now under the water. Things should pick up here right? Eh, not quite.
Now we begin the portion of our shower that entails standing motionless under the stream of water for a good long while. Until his skin is numb apparently. This makes sense if you know that the sensation of the shower is like being pelted with gravel for him. Once our skin is good and numb, then we can commence showering.
From here on out, it's pretty standard. Our only issue as of now with after shower is drying off. He refuses. To him it isn't necessary and what do you mean his clothes are all twisted. There's no tags he can feel, so obviously it's fine.
Just an example of how much time a day we spend on Kaiden's disorder. Small things that you don't even think of are such huge hurdles.
I mean sure I can sit there and rush him through his shower, I can physically hose him down and be done in less than ten minutes. But, and trust me on this, you don't want to be anywhere near him for the rest of the day and possibly part of the next depending on just how upset he is.
I have to continually remind myself of what it feels like to be him. It is difficult, and I'm not perfect, but we're working on it. We'll figure it out. Me and him? We're a pretty good team.
Quote of the Day:
"Jae! We do not throw organs in the house!"
It's been two years, two extremely stinky, muddy, wet (from dragging them in and hosing them off) years. We have almost left "Stinky Boy Phase". While Rogue still gives you the are you serious look, he will get in when I point out that yes I am actually serious. Kaiden on the other hand, is a bit more difficult.
We moved and it was a great move. Because of a friend of ours who was willing to take on 7 roommates, we are living in a five bedroom house. Only one problem, our bathroom does not have a tub. Shower stall only. It's big enough to help my five year old with her hair. I actually love it.
When you take a shower, it's not a big deal really. You get your clothes ready, you turn on the water, you get in, get clean, get out. Dry off, get dressed, and move on with your day. Simple. I can get it done in five minutes if needed.
Kaiden takes at least 45 minutes to shower. First, we have to establish that yes he is taking a shower. Then, we move on to, get your clean clothes. This takes about ten minutes of back and forth. His room is on the opposite side of the house.
So, now we are in the bathroom. Then we move into our door routine. Close it this much, well can I possibly open it this much more. The door at it's optimal (too wide for me, too closed for him) width, we then turn on the water. Then we get undressed. Then we get in the shower. Not the water. Just the shower.
It takes a bit to work up to actually getting under the water. We start with hands, then arms, feet, head, torso, and legs. We are now under the water. Things should pick up here right? Eh, not quite.
Now we begin the portion of our shower that entails standing motionless under the stream of water for a good long while. Until his skin is numb apparently. This makes sense if you know that the sensation of the shower is like being pelted with gravel for him. Once our skin is good and numb, then we can commence showering.
From here on out, it's pretty standard. Our only issue as of now with after shower is drying off. He refuses. To him it isn't necessary and what do you mean his clothes are all twisted. There's no tags he can feel, so obviously it's fine.
Just an example of how much time a day we spend on Kaiden's disorder. Small things that you don't even think of are such huge hurdles.
I mean sure I can sit there and rush him through his shower, I can physically hose him down and be done in less than ten minutes. But, and trust me on this, you don't want to be anywhere near him for the rest of the day and possibly part of the next depending on just how upset he is.
I have to continually remind myself of what it feels like to be him. It is difficult, and I'm not perfect, but we're working on it. We'll figure it out. Me and him? We're a pretty good team.
Quote of the Day:
"Jae! We do not throw organs in the house!"
Sunday, July 1, 2012
Well that's New!
Over the next few days our lifes are taking on a new challenge....chicken pox! Wish us luck, Melodie can't stop talking about it....
I'm not gonna lie, I've pretty much let her do whatever she wants (within reason). I gave her Folcalin, you wouldn't know. So I'm a little worried about what happens when the Focalin wears off. But I should have help by then. I also have pox, and so does Lilly.
I'd like to say I have a plan, but I don't. We're gonna tackle this head on!!!
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